Nervous about appointment today to go over MRI results. I already know I'm in pretty bad trouble it's just a question of how much & what's going to be done about it. My guess is a conservative approach is going to be tried again. I'm ok with that if I get some relief. The current situation isn't sustainable. Then I see the pain med doc next week. That needs to change, also. Ima hot mess right now....
MRI is a mess. Pretty much what I expected. Major back surgery coming, worse than last one. Probably at least a few months away.
Update - the worker came and left. It still looks like Shirt. I am really not satisfied. Apparently, the guy who does the tiling uses sharpies on the tiles, which caused the dark marks. He filled the gaps and holes with caulking, but ugh! I’m not satisfied. Maybe I’m expecting too much and being too picky here ?
Update - the worker came and left. It still looks like shiat. I am really not satisfied. Apparently, the guy who does the tiling uses sharpies on the tiles, which caused the dark marks. He filled the gaps and holes with caulking, but ugh! I’m not satisfied. Maybe I’m expecting too much and being too picky here ?
Not at all, you have every right to expect better quality than that
I got the vid. Two years in aCovid infested hospital nothing. I was brought down by my other half who probably got it at church! Haha So far I'm not horrible, no fever just slight achiness and coughy but we shall see. Don't let your guard down people. It's still out there. Stay safe.
Get well soon. May it be very mild and leave no traces.
But I don't see And I don't feel But tightly hold up silently My hands before my fading eyes And in my eyes Your smile
I mistook stars reflected in a pond at night for those in the sky.
Nervous about appointment today to go over MRI results. I already know I'm in pretty bad trouble it's just a question of how much & what's going to be done about it. My guess is a conservative approach is going to be tried again. I'm ok with that if I get some relief. The current situation isn't sustainable. Then I see the pain med doc next week. That needs to change, also. Ima hot mess right now....
MRI is a mess. Pretty much what I expected. Major back surgery coming, worse than last one. Probably at least a few months away.
Seems like bad news but maybe there is something good in it. If they want to do it, there is hope it can really help. Be strong, my friend.
But I don't see And I don't feel But tightly hold up silently My hands before my fading eyes And in my eyes Your smile
I mistook stars reflected in a pond at night for those in the sky.
Update - the worker came and left. It still looks like shiat. I am really not satisfied. Apparently, the guy who does the tiling uses sharpies on the tiles, which caused the dark marks. He filled the gaps and holes with caulking, but ugh! I’m not satisfied. Maybe I’m expecting too much and being too picky here ?
No! You don't back down until you're satisfied. You paid plenty of money for the job, it should be done right~!
Maybe getting the COVID booster & the yearly flu shot at the same time wasn't such a good idea. I have to time it in between chemo sessions & I wanted to get it over with as I have too much stuff to deal with in the coming months. I don't do vaccines well. Luckily we're in that happy place where pro baseball, hockey, football (US) & basketball are going on at the same time. & Formula 1!
I also feel like we may have got our boy back (but I don't want to jinx anything). People may be naysayers about drug-therapy for mental health (and I don't think it should be relied on as the sole treatment) but too many times I've seen firsthand how much it can change, or even save, lives.
Nervous about appointment today to go over MRI results. I already know I'm in pretty bad trouble it's just a question of how much & what's going to be done about it. My guess is a conservative approach is going to be tried again. I'm ok with that if I get some relief. The current situation isn't sustainable. Then I see the pain med doc next week. That needs to change, also. Ima hot mess right now....
MRI is a mess. Pretty much what I expected. Major back surgery coming, worse than last one. Probably at least a few months away.
I'm really sorry to hear this. Do you trust your care team? Have you been able to find any relief in swimming/PT?
It's a difficult thing to feel like you've been betrayed by your own body's immune system.
MRI is a mess. Pretty much what I expected. Major back surgery coming, worse than last one. Probably at least a few months away.
I'm really sorry to hear this. Do you trust your care team? Have you been able to find any relief in swimming/PT?
It's a difficult thing to feel like you've been betrayed by your own body's immune system.
Thank you @notkristie . I have a great care team, especially my rheumatologist & neurosurgeon. I do get betrayed by office staffs & insurance at times. I went through a heavy PT program recently but it didn't do much good. Most of what they were preaching I had figured out myself the last 15 years. & it got messed up by office incompetence & my getting COVID in June. I have swam a lot over the years just to get some exercise but haven't been able to pull that off recently. I changed pain meds fairly recently when the program I was on became ineffective. The new program hasn't been effective. I have a specific pain med doctor & I meet with him Monday. It's probably at the point where I have to go back to the heavy narcotics but I trust this guy. He's got a national reputation. So basically what's going on is my whole spine is being attacked by the RA. It's not common with RA but the version I have is rare & aggressive. Very similar to what killed Glenn Frey of the Eagles. The situation has become dire in my lower back where I had surgery 4-5 years ago to the point where I'm looking at a wheelchair if nothing is done. So, I'm getting a steroid injection in my lower spine as a bandage & then I meet with the neurosurgeon who actually is another nationally known guy. Teaches in addition to operates. He regards surgery as a last resort unlike others in the field. I probably need a total spinal fusion but that's very dangerous & he's afraid the operation would kill me. Most likely I'll have a partial fusion in my lower back for now which is risky too. There's some (TBD how many, at least a few) months before all this happens as there a lot of hoops to jump through with insurance etc. For extra spice, the ligaments in my joints are giving up after trying to compensate for RA damage for years. I've got bones sticking out in odd places or starting to stick out. I'm at the end of the road with available RA treatments, have been through all of them. We're going back to one that slowed the progression for a long time then stopped. The bad news is it's a hard core cancer drug with fairly brutal side effects. The IVs take 5 hours. It's been 3 or 4 years since I've been on it & the hope is it'll work again at least some. Sorry to babble on, I've been kind of living in my own private Idaho this week, so to speak. I've been under the sword of Damocles for a long time. Bottom line is life is a hot mess right now. BTW I'm glad you are getting some good help for your son. I like kids & don't like to see them have problems like that. Thank you for your post.
I also feel like we may have got our boy back (but I don't want to jinx anything). People may be naysayers about drug-therapy for mental health (and I don't think it should be relied on as the sole treatment) but too many times I've seen firsthand how much it can change, or even save, lives.
I agree with you wholeheartedly about meds! They are a great tool when they’re needed. But of course they cannot be relied on entirely, that’s where visits to a mental health professional come in to play.
Excellent news about your son, great to hear that he’s back to bring himself.